This website was made by members of the Cardiac Sarcoidosis Facebook group. There are at least two Cardiac Sarcoidosis Facebook groups, this one with the majority of the members based in the USA, and another with the majority of the members based in the UK. Both groups welcome members from anywhere, and are tremendous resources for sharing information and feelings about this rare disease.

There were two motivations for creating a website outside of Facebook:

• When someone is first diagnosed with cardiac sarcoidosis, they often look to Google to learn about it. Unfortunately, much of the information that comes up in Google searches is not up to date with current treatments, and presents a much more pessimistic prognosis than what many actually experience nowadays. The hope is that this website can rise in Google ranking over time so that people can find their way to the Facebook groups and interact with others going through treatment.
• When someone is diagnosed with cardiac sarcoidosis, they probably have a lot of questions about how the experience has been for others in terms of symptoms, ICD implant, medication, timelines, and so on. This website is a place where you can learn about people's experieces in a linear and complete stream of information, instead of having to piece it together through a combination of newcomer questions and reviewing past Facebook posts.

DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE. The information on this website, including text, images, and other material, is for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you have regarding a medical condition or treatment and before beginning or modifying a health care regimen. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.